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lupusawareness #lupusawareness Instagram Hashtag

It was a gift given by my mom and She always has been dreaming that I would get a prince of My Life One Day and finally I did get my Prince...💗
Nevertheless, it's an early post I'm getting married in December this year..🎅
It was all finalize yesterday and now somewhere today I m missing my mummy a lot and that was one of the reasons for this post...🙄
Being a patient of chronic illnesses in India where there are so many things that matter when two people have to go into a relationship like marriage that very few boys would have the guts to get married to a girl with chronic illness 😰 I'm someone who has got many chronic illnesses to deal with my man knows what he is getting into🧚 
I'm lucky that he thinks of me as a normal girl and that makes me feel beautiful ..🧚💗💗 Little joys to share... #lupusawareness #glutenfree #gastroparesis #celiacawareness #simplejoys #love #chronicillness #blessed #grateful

It was a gift given by my mom and She always has been dreaming that I would get a prince of My Life One Day and finally I did get my Prince...💗 Nevertheless, it's an early post I'm getting married in December this year..🎅 It was all finalize yesterday and now somewhere today I m missing my mummy a lot and that was one of the reasons for this post...🙄 Being a patient of chronic illnesses in India where there are so many things that matter when two people have to go into a relationship like marriage that very few boys would have the guts to get married to a girl with chronic illness 😰 I'm someone who has got many chronic illnesses to deal with my man knows what he is getting into🧚 I'm lucky that he thinks of me as a normal girl and that makes me feel beautiful ..🧚💗💗 Little joys to share... #lupusawareness #glutenfree #gastroparesis #celiacawareness #simplejoys #love #chronicillness #blessed #grateful

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It may feel like it at times.. but the truth is you’re really not alone.. you may not get the support you need from the people you expect it from first... but there is a whole community of people in your shoes that will be there for you! Even outside of things autoimmune related... so many of us have formed bonds and friendships in random unexpected places including IG lol... don’t give up on everyone.. there’s still some good out there!💜
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#lifeoverautoimmunediseases #autoimmunedisease #autoimmunediseasewarrior #lupus #kikuchifujimoto #kikuchifujimotodisease #sjogrens #fibromyalgia #sjogrenssyndrome #rheumatoidarthritis #chronicillness #crohns #purple #spoonie #brave #survivor #support #faith #passion #awareness #fitness #health #inform #knowledge #life #live #strength #advocate #lupusawareness #MyAutoimmuneTruth

It may feel like it at times.. but the truth is you’re really not alone.. you may not get the support you need from the people you expect it from first... but there is a whole community of people in your shoes that will be there for you! Even outside of things autoimmune related... so many of us have formed bonds and friendships in random unexpected places including IG lol... don’t give up on everyone.. there’s still some good out there!💜 • • • #lifeoverautoimmunediseases #autoimmunedisease #autoimmunediseasewarrior #lupus #kikuchifujimoto #kikuchifujimotodisease #sjogrens #fibromyalgia #sjogrenssyndrome #rheumatoidarthritis #chronicillness #crohns #purple #spoonie #brave #survivor #support #faith #passion #awareness #fitness #health #inform #knowledge #life #live #strength #advocate #lupusawareness #MyAutoimmuneTruth

13 likes - 13 comments
8 DAYS TO GO!!! Today is the day when you do a checklist to see if you are ready for An Evening of Hope. Will you be joining us?

#thelupusdrive #lupusawareness #lupus #luouswarrior

8 DAYS TO GO!!! Today is the day when you do a checklist to see if you are ready for An Evening of Hope. Will you be joining us? #thelupusdrive #lupusawareness #lupus #luouswarrior

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Good morning my Butterfly Friends!  Day off today!  And spending it running round different hospitals for different appointments!  Such fun! 💜
#slimmingworlduk #swfamily #eatinghealthy #gettingfit #lupus #healthygoals #healthyeating #lupuschick #lupussucks #fitbit #everydaygoals #chronicfatigue #lupusawareness #invisibleillness #instalove #instafriends #swfriends  #swfamilyuk
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Good morning my Butterfly Friends! Day off today! And spending it running round different hospitals for different appointments! Such fun! 💜 #slimmingworlduk #swfamily #eatinghealthy #gettingfit #lupus #healthygoals #healthyeating #lupuschick #lupussucks #fitbit #everydaygoals #chronicfatigue #lupusawareness #invisibleillness #instalove #instafriends #swfriends #swfamilyuk 💜

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Good morning 💜 start your day right and if it’s not god that you believe in then give thanks to what ever your highest belief is. Gratitude takes you a long way 🌸🕉💟 #lupusawareness #lupuswarrior #lupusfighter #yougotthis #godsgotyou #gratitudequotes #begrateful #wakeupandsmile

Good morning 💜 start your day right and if it’s not god that you believe in then give thanks to what ever your highest belief is. Gratitude takes you a long way 🌸🕉💟 #lupusawareness #lupuswarrior #lupusfighter #yougotthis #godsgotyou #gratitudequotes #begrateful #wakeupandsmile

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Phoenix! Come hang out with me and Urban Greenhouse Dispensary (@ugd_az) this Friday at the @fullmoonfestivalphx. We’re celebrating  the harvest moon and start of the autumn equinox with a music and arts festival that also includes a moonlit vinyasa flow. l’ll be joining @ugd_az at their table to help them answer your MMJ questions. The CSGC Astral Flower Tee will also be available at a discounted price for my Phoenix people! 🌵 For festival details head to @fullmoonfestivalphx, and don’t forget, we’re giving away 2 free tickets and the CSGC Astral Flower Tee, contest rules on next slide 🌿 I hope to meet some of you in person!

Phoenix! Come hang out with me and Urban Greenhouse Dispensary (@ugd_az) this Friday at the @fullmoonfestivalphx. We’re celebrating the harvest moon and start of the autumn equinox with a music and arts festival that also includes a moonlit vinyasa flow. l’ll be joining @ugd_az at their table to help them answer your MMJ questions. The CSGC Astral Flower Tee will also be available at a discounted price for my Phoenix people! 🌵 For festival details head to @fullmoonfestivalphx, and don’t forget, we’re giving away 2 free tickets and the CSGC Astral Flower Tee, contest rules on next slide 🌿 I hope to meet some of you in person!

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Seriously though! Up late again. Can’t get back into this routine. Always end up feeling worse when I am not sleeping at night. Got my lavender blowing on high next to my bed! Meditation to follow. Hopefully a good nights rest and no pain. Sleep is way too important for people who suffer from chronic illness. It’s not just sleep! It’s what keeps us going. Our bodies require way more rest than the average person. I am embarrassed to say this but if I don’t sleep 9 hrs I feel it. 8 isn’t enough, but with so much pain and disruptions through the night with my body, I am lucky if I get a good 4-5. I might be in bed for a lot of hours, but getting actual good sleep is difficult. Me and sleep have a deep relationship. We need each other. Not optional. The brain fog and fatigue I live with each day has a lot to do with my sleep. So the less I have the worse those things are. To be quite honest I can sleep and still feel like I’m going to fall on my face. It’s terrible. I’m never NOT tired. And that’s the cold, hard, truth. So wish we luck. #lupusawareness #lupus #autoimmunedisease #connectivetissuedisease #chronicpain #chronicillness #fatigue #sleep #rest #butyoudontlooksick #invisibleillness #poodlesofinstagram #dogsofinstagram #typo 💜

Seriously though! Up late again. Can’t get back into this routine. Always end up feeling worse when I am not sleeping at night. Got my lavender blowing on high next to my bed! Meditation to follow. Hopefully a good nights rest and no pain. Sleep is way too important for people who suffer from chronic illness. It’s not just sleep! It’s what keeps us going. Our bodies require way more rest than the average person. I am embarrassed to say this but if I don’t sleep 9 hrs I feel it. 8 isn’t enough, but with so much pain and disruptions through the night with my body, I am lucky if I get a good 4-5. I might be in bed for a lot of hours, but getting actual good sleep is difficult. Me and sleep have a deep relationship. We need each other. Not optional. The brain fog and fatigue I live with each day has a lot to do with my sleep. So the less I have the worse those things are. To be quite honest I can sleep and still feel like I’m going to fall on my face. It’s terrible. I’m never NOT tired. And that’s the cold, hard, truth. So wish we luck. #lupusawareness #lupus #autoimmunedisease #connectivetissuedisease #chronicpain #chronicillness #fatigue #sleep #rest #butyoudontlooksick #invisibleillness #poodlesofinstagram #dogsofinstagram #typo 💜

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Ever sit at a stop sign and wait for it to turn green? Well I did today. I don’t think the cars behind me appreciated it. Took me a few seconds to try and figure out why everyone was honking 🤣🤣🤦🏻‍♀️ #lupusinspires #lupus #lupusfog #lupusawareness #brainfart #stopsignsdontturngreen #roughday #ineedanewbrain

Ever sit at a stop sign and wait for it to turn green? Well I did today. I don’t think the cars behind me appreciated it. Took me a few seconds to try and figure out why everyone was honking 🤣🤣🤦🏻‍♀️ #lupusinspires #lupus #lupusfog #lupusawareness #brainfart #stopsignsdontturngreen #roughday #ineedanewbrain

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I want to fly in this purple plane! ✈️ 😍 #supportlupus
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Munich ✈ @byronsphillips👨🏻‍✈️
#Repost @aircrews with @get_repost 📷

I want to fly in this purple plane! ✈️ 😍 #supportlupus ・・・ Munich ✈ @byronsphillips👨🏻‍✈️ #Repost @aircrews with @get_repost 📷

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The face of lupus. This is me right now. I usually don’t post about my private battle with this awful disease, but I feel that now it’s time to show people that just bc I seem “ok” doesn’t mean I’m doing ok. Some days I can’t even get out of bed which sucks bc I support myself. This red rash I get that you see across my nose and cheek is called a butterfly rash. No, it doesn’t hurt, but it doesn’t look pretty having peeling, dry, red patches on your face. My body is feverish and I’m in extraordinary pain. I could barely move. I have no one to come rub me down, or make me tea, or make warm epsom salt baths for me to lay in. This is the ugly truth about my lupus and I’m feeling like I’m loosing this battle. I am constantly in and out of the hospitals. I no longer wanna live to suffer. I’m just spreading awareness to the people that think my pain is an exaggeration, or that I’m lazy when I’m forced to quit jobs, and when I was forced to quit college. This is the ugly truth. #lupusawareness #lupus #butterflyrash #autoimmunedisease #lupuswarrior #ithurts #chronicillness #imtrying #teamlupus #fucklupus

The face of lupus. This is me right now. I usually don’t post about my private battle with this awful disease, but I feel that now it’s time to show people that just bc I seem “ok” doesn’t mean I’m doing ok. Some days I can’t even get out of bed which sucks bc I support myself. This red rash I get that you see across my nose and cheek is called a butterfly rash. No, it doesn’t hurt, but it doesn’t look pretty having peeling, dry, red patches on your face. My body is feverish and I’m in extraordinary pain. I could barely move. I have no one to come rub me down, or make me tea, or make warm epsom salt baths for me to lay in. This is the ugly truth about my lupus and I’m feeling like I’m loosing this battle. I am constantly in and out of the hospitals. I no longer wanna live to suffer. I’m just spreading awareness to the people that think my pain is an exaggeration, or that I’m lazy when I’m forced to quit jobs, and when I was forced to quit college. This is the ugly truth. #lupusawareness #lupus #butterflyrash #autoimmunedisease #lupuswarrior #ithurts #chronicillness #imtrying #teamlupus #fucklupus

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Homemade Bliss Balls 🤗🥥🍫 #blissballsforthewin

Homemade Bliss Balls 🤗🥥🍫 #blissballsforthewin

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Veggie bean chilli 🌶 Raiding the freezer for comfort food now the rain is back 🙄 #sydneysortyourweatherout

Veggie bean chilli 🌶 Raiding the freezer for comfort food now the rain is back 🙄 #sydneysortyourweatherout

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Comment < Yes > if you want one 💜. .
Your generosity will help us spread awareness about Lupus and help fund research.
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Wear purple proudly and show everyone that you are still fabulous despite the struggles . .
Link in my bio 💜🔥. .
Thanks to @strongcurvyfit @iamqueentanae 💜 .
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#lupus #lupusawareness #lupuslife #lupuswarrior #lupusfighter #lupusflare #lupussucks

Comment < Yes > if you want one 💜. . Your generosity will help us spread awareness about Lupus and help fund research. . Wear purple proudly and show everyone that you are still fabulous despite the struggles . . Link in my bio 💜🔥. . Thanks to @strongcurvyfit @iamqueentanae 💜 . . #lupus #lupusawareness #lupuslife #lupuswarrior #lupusfighter #lupusflare #lupussucks

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More shipping out tomorrow!  Don’t forget to check us out!  #autismmom #cancer #cancersucks #lupus #lupusawareness #autismawareness #cancer #fall

More shipping out tomorrow! Don’t forget to check us out! #autismmom #cancer #cancersucks #lupus #lupusawareness #autismawareness #cancer #fall

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@KennethWeal 👑
@KenWeal® clothing 🦅

www.KenWeal.com 
#KennethWeal #KenWeal

@KennethWeal 👑 @KenWeal® clothing 🦅 www.KenWeal.com #KennethWeal #KenWeal

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So, what came first the chicken or the egg? I feel like this all the time with my chronic pain and anxiety. I can tell you 110% that as my pain and illness increased, so did my anxiety. Pain will do that to you. Doctors who look at you like your crazy, will do that to you. Ending up in the ER with random inflammation for NO reason, will do that to you. Or ending up in the ER with NO answers, will do that to you. Going to a doctor, and they turn to you and say “you don’t look sick”, or “ you’re too young to have that or be sick.” Having doctors not even look at my records and send me on my way while at the worst pain of your life, will do that to you. I can give you a million and one reasons how my chronic illness has affected my mental health. Do I think I’d have anxiety alone if I wasn’t sick, yes, probably. I do tend to be an anxious person. Grew up in a crazy environment. But understand that it’s manifested into something much worse because of what has happened to me. Sometimes you get a scary pain somewhere that you never felt before and you are petrified! Maybe I’m alone in this, maybe I am not. But anxiety is no joke. Don’t just tell someone to go calm down or write it off as nothing; because it’s terrible. Also be understanding of someone who suffers from anxiety because you have NO idea why they are that way! When I’m more stable with my health so is my anxiety. I try not to let it win but with experiences like mine, make it hard to be calm.  #chronicpain #chronicillness #lupusawareness #autoimmunedisease #connectivetissuedisease #anxiety #mentalhealth #depression #mymind #mybody #invisibleillness #butyoudontlooksick #spoonie #curearthritis #themightysite #pain #justkeepswimming #dontjudgeabookbyitscover 💜💪🏼🙌🏼🙏🏼

So, what came first the chicken or the egg? I feel like this all the time with my chronic pain and anxiety. I can tell you 110% that as my pain and illness increased, so did my anxiety. Pain will do that to you. Doctors who look at you like your crazy, will do that to you. Ending up in the ER with random inflammation for NO reason, will do that to you. Or ending up in the ER with NO answers, will do that to you. Going to a doctor, and they turn to you and say “you don’t look sick”, or “ you’re too young to have that or be sick.” Having doctors not even look at my records and send me on my way while at the worst pain of your life, will do that to you. I can give you a million and one reasons how my chronic illness has affected my mental health. Do I think I’d have anxiety alone if I wasn’t sick, yes, probably. I do tend to be an anxious person. Grew up in a crazy environment. But understand that it’s manifested into something much worse because of what has happened to me. Sometimes you get a scary pain somewhere that you never felt before and you are petrified! Maybe I’m alone in this, maybe I am not. But anxiety is no joke. Don’t just tell someone to go calm down or write it off as nothing; because it’s terrible. Also be understanding of someone who suffers from anxiety because you have NO idea why they are that way! When I’m more stable with my health so is my anxiety. I try not to let it win but with experiences like mine, make it hard to be calm. #chronicpain #chronicillness #lupusawareness #autoimmunedisease #connectivetissuedisease #anxiety #mentalhealth #depression #mymind #mybody #invisibleillness #butyoudontlooksick #spoonie #curearthritis #themightysite #pain #justkeepswimming #dontjudgeabookbyitscover 💜💪🏼🙌🏼🙏🏼

42 likes - 42 comments
I created this a while back. Wanted to get it into the hands of those that could use it. 
Tips/motivation/inspiration for those living with lupus. 
Are you a #lupie 
Know someone with #lupus 
Share this with them. Link in profile. 
#lupus #autoimmunedisease #autoimmune #lupusawareness #lupuswarriors #lupussupport #people #healing #support #share #purple #power #butterfly #energy #transformation #free #ebook #course #coming

I created this a while back. Wanted to get it into the hands of those that could use it. Tips/motivation/inspiration for those living with lupus. Are you a #lupie Know someone with #lupus Share this with them. Link in profile. #lupus #autoimmunedisease #autoimmune #lupusawareness #lupuswarriors #lupussupport #people #healing #support #share #purple #power #butterfly #energy #transformation #free #ebook #course #coming

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Another powerhouse will be in the building next week! Ms. Sheilahe Brown @flexxybrown will be on the mic with me to talk about competing and working as a promoter, choreographer and judge in the IFBB (International Federation of Body Building & Fitness). Diagnosed with Lupus Nephritis in August of 2013, we’ll talk about her strategy to conquer the disease and her non-profit that helps lupus survivors take charge of their own life.⠀⠀⠀⠀⠀⠀
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TUNE IN @ 7pm CST
LISTEN - kennesh.com/radio 
WATCH - facebook.com/kenneshradio

Another powerhouse will be in the building next week! Ms. Sheilahe Brown @flexxybrown will be on the mic with me to talk about competing and working as a promoter, choreographer and judge in the IFBB (International Federation of Body Building & Fitness). Diagnosed with Lupus Nephritis in August of 2013, we’ll talk about her strategy to conquer the disease and her non-profit that helps lupus survivors take charge of their own life.⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ TUNE IN @ 7pm CST LISTEN - kennesh.com/radio WATCH - facebook.com/kenneshradio

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i’ve been having sooo many bad days lately, i think it was about time that i had one good one! this disease (amongst others) have been incredibly debilitating for me within the last year of being diagnosed. i’m not a “normal” 22 year old, and i will never be. i am slowly coming to terms with this, with great struggle. but i did a lot of activity (for me) today and although i’m exhausted, i feel okay right now. thank you to my mom for being there for me today and pushing me but also knowing my limits and respecting them. i’ve done a lot of praying lately and with God and good meds hopefully i’ll have more good days. it’s the little victories. 💜🦋💃🏼

i’ve been having sooo many bad days lately, i think it was about time that i had one good one! this disease (amongst others) have been incredibly debilitating for me within the last year of being diagnosed. i’m not a “normal” 22 year old, and i will never be. i am slowly coming to terms with this, with great struggle. but i did a lot of activity (for me) today and although i’m exhausted, i feel okay right now. thank you to my mom for being there for me today and pushing me but also knowing my limits and respecting them. i’ve done a lot of praying lately and with God and good meds hopefully i’ll have more good days. it’s the little victories. 💜🦋💃🏼

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Who needs candlelight when there’s computer-glow to make a writer look insane? 😳🤣😂😂😂 Lupus is flaring (you can see the rash on my nose, cheek and chest) but I am still working. What is stopping you from pursuing your dreams? #lupuswarrior #lupusawareness #writeyourstory #writersofinstagram #bookstagram #booklovers #liveyourlife #pushyourself #bestrong #havefaith #behappy #storytellers #invisibleillness #ptsdrecovery #authorsofinstagram #author #iwrite

Who needs candlelight when there’s computer-glow to make a writer look insane? 😳🤣😂😂😂 Lupus is flaring (you can see the rash on my nose, cheek and chest) but I am still working. What is stopping you from pursuing your dreams? #lupuswarrior #lupusawareness #writeyourstory #writersofinstagram #bookstagram #booklovers #liveyourlife #pushyourself #bestrong #havefaith #behappy #storytellers #invisibleillness #ptsdrecovery #authorsofinstagram #author #iwrite

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Come support my sis @lovablenai  or a simple donation would be appreciated as well.. #lupusawareness #september222018

Come support my sis @lovablenai or a simple donation would be appreciated as well.. #lupusawareness #september222018

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gf.me/u/mbws9k
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My #tia really says it best on the campaign page. If you can #donate, please do.❣️ #family #veteran #USArmy #armyvet #armyveteran #brotherinarms #lupus #lupusawareness #sometimesitslupus

gf.me/u/mbws9k • • • My #tia really says it best on the campaign page. If you can #donate, please do.❣️ #family #veteran #USArmy #armyvet #armyveteran #brotherinarms #lupus #lupusawareness #sometimesitslupus

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Everyone wears shorts and Tshirts and I'm in sweats and a hoodie and 5 blankets. #socold #lupusawareness #raynauds #bundleup #reallifespoonie #outofspoons

Everyone wears shorts and Tshirts and I'm in sweats and a hoodie and 5 blankets. #socold #lupusawareness #raynauds #bundleup #reallifespoonie #outofspoons

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https://www.eventbrite.com/e/fall-harvest-hoedown-going-country-for-a-cure-tickets-49360820543?ref=eios&aff=eios #sponsor #newhampshire #nhevents #fundraiser #lupusawareness #lupus

https://www.eventbrite.com/e/fall-harvest-hoedown-going-country-for-a-cure-tickets-49360820543?ref=eios&aff=eios #sponsor #newhampshire #nhevents #fundraiser #lupusawareness #lupus

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https://www.eventbrite.com/e/fall-harvest-hoedown-going-country-for-a-cure-tickets-49360820543?ref=eios&aff=eios #lupusevent #newhampshire #lupusnh #nhlupus #lupusawareness #lupussupport

https://www.eventbrite.com/e/fall-harvest-hoedown-going-country-for-a-cure-tickets-49360820543?ref=eios&aff=eios #lupusevent #newhampshire #lupusnh #nhlupus #lupusawareness #lupussupport

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Beast Cardio and Abs

I got my workout done around 10 am but the day got away from me and I’m just now getting to post! I know everybody has been waiting in anticipation! 😂

I was asked today if I’m in a lupus flare or if this is a progressive part of the disease. Honestly, I don’t know. And, it doesn’t matter to me because it doesn’t change what I do.

I will tell you that working out has become a lot more difficult! And there are days when I just don’t want to do it! But that’s where discipline comes in. And the years of doing this day in and day out and wanting it is best for my body every single day vs what feels good in the moment has paid off. Now it’s automatic. I feel a pull or a tag to get myself out of this hard time and get to work! 
And I have a group of ladies who have my back. Support is so important when you go through hard times! 
This life and this body are a blessing. It’s my job to show up for it every day. It’s the only place I have to live. #beachbodyondemand #coachlife #beyourbest #bodyconfidence #godisgood #selfcare #lovetheskinyourein #youcandoit #havefaith #gratitude #motivation #sahmlife #sahmproblems #lupusawareness #autoimmunedisease #bostonterrierlove #icandoallthingsthroughchrist #support #nikemetcons #athomeworkouts #imheretohelp #transformation #patience #godisfaithful #prayer #selflove #drinkyourwater #stayhydrated #accountability #weightlossjourney

Beast Cardio and Abs I got my workout done around 10 am but the day got away from me and I’m just now getting to post! I know everybody has been waiting in anticipation! 😂 I was asked today if I’m in a lupus flare or if this is a progressive part of the disease. Honestly, I don’t know. And, it doesn’t matter to me because it doesn’t change what I do. I will tell you that working out has become a lot more difficult! And there are days when I just don’t want to do it! But that’s where discipline comes in. And the years of doing this day in and day out and wanting it is best for my body every single day vs what feels good in the moment has paid off. Now it’s automatic. I feel a pull or a tag to get myself out of this hard time and get to work! And I have a group of ladies who have my back. Support is so important when you go through hard times! This life and this body are a blessing. It’s my job to show up for it every day. It’s the only place I have to live. #beachbodyondemand #coachlife #beyourbest #bodyconfidence #godisgood #selfcare #lovetheskinyourein #youcandoit #havefaith #gratitude #motivation #sahmlife #sahmproblems #lupusawareness #autoimmunedisease #bostonterrierlove #icandoallthingsthroughchrist #support #nikemetcons #athomeworkouts #imheretohelp #transformation #patience #godisfaithful #prayer #selflove #drinkyourwater #stayhydrated #accountability #weightlossjourney

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👨🏻‍⚕️🐊

👨🏻‍⚕️🐊

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You know it’s real when they send you a biohazard box! I have given myself two injections and so far so good. I been doing them in the belly (still hurts lol) but beats having that IV in your arm for an hour. #lupus #Benlysta #lupusawareness

You know it’s real when they send you a biohazard box! I have given myself two injections and so far so good. I been doing them in the belly (still hurts lol) but beats having that IV in your arm for an hour. #lupus #Benlysta #lupusawareness

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Walking this journey
We can sometimes become so focused toward our destination we miss the beauty along the way
Noticing only the fallen branches or obstacles put before us as a hindrance 
Failing to recognize when we need to stop and breathe 
Open our hearts, minds and eyes 3
To be child like in wonderment
Awe and gratitude for all that is ahead of us and all that is behind us
Strengthening our will and faith 
Diminishing our fears

What will you notice today?

Walking this journey We can sometimes become so focused toward our destination we miss the beauty along the way Noticing only the fallen branches or obstacles put before us as a hindrance Failing to recognize when we need to stop and breathe Open our hearts, minds and eyes 3 To be child like in wonderment Awe and gratitude for all that is ahead of us and all that is behind us Strengthening our will and faith Diminishing our fears What will you notice today?

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So I guess My Infusion + Burnout from The Last Week + Stress of Studying for my Calc and Bio Exams + Yesterday's TB test = Full Body Hives. 
I thought they were stress hives at first, but as more popped up I realized I must be reacting to my TB test. Explains why my hives flared up yesterday.  No reaction at the injection site, though. 😂

I've never reacted to a TB test before and I just had one last year while I was first on Benlysta. Body, why you gotta start adding new things you're sensitive to?! 😥

I stayed home from school today to rest, but still feel like I've had a full day. I'm ready to go back to sleep.

So I guess My Infusion + Burnout from The Last Week + Stress of Studying for my Calc and Bio Exams + Yesterday's TB test = Full Body Hives. I thought they were stress hives at first, but as more popped up I realized I must be reacting to my TB test. Explains why my hives flared up yesterday. No reaction at the injection site, though. 😂 I've never reacted to a TB test before and I just had one last year while I was first on Benlysta. Body, why you gotta start adding new things you're sensitive to?! 😥 I stayed home from school today to rest, but still feel like I've had a full day. I'm ready to go back to sleep.

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I had to change something about me. With  Lupus you start to loose your hair. I decided to get my hair cut and dyed my hair a lite purple. I beat the disease before it had a chance to win. By taking my hair. I am learning how to to kinda deal with it. It's such a bad and sucks!! #bepositive #lupuswarrior #supporteachother #fight #lupus #lupusawareness #hairstyles #hair #haircut

I had to change something about me. With Lupus you start to loose your hair. I decided to get my hair cut and dyed my hair a lite purple. I beat the disease before it had a chance to win. By taking my hair. I am learning how to to kinda deal with it. It's such a bad and sucks!! #bepositive #lupuswarrior #supporteachother #fight #lupus #lupusawareness #hairstyles #hair #haircut

133 likes - 133 comments
Don’t let haters get me off my grind...
Whip my hair, if I know I’ll be fine...
Keep fighting until I get there
When I’m down and I feel like giving up...
(I think again)...
I whip my hair back n forth...
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. #melanin #dmv #blackgirlmagic #va #md #blackgirlsrock #washingtondc #blackwomen #blackisbeautiful #dc #dmvnetwork #iDoEvents  #melaninpoppin #melaninonfleek #blacklove #blackgirls #blackbeauty #blackqueen  #squadGoals #2019DMVCCADS #202Media #naturallyLupie #LupieChick #LupusAwareness

Don’t let haters get me off my grind... Whip my hair, if I know I’ll be fine... Keep fighting until I get there When I’m down and I feel like giving up... (I think again)... I whip my hair back n forth... . . . . . #melanin #dmv #blackgirlmagic #va #md #blackgirlsrock #washingtondc #blackwomen #blackisbeautiful #dc #dmvnetwork #iDoEvents #melaninpoppin #melaninonfleek #blacklove #blackgirls #blackbeauty #blackqueen #squadGoals #2019DMVCCADS #202Media #naturallyLupie #LupieChick #LupusAwareness

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@kazytauginas sorry We couldn’t join the walk but we can join the fight! @lf78_apparel proudly owned by a #LupusWarrior #LF78 #lupusawareness #lupuswalk #LosAngeles #lupussupport

@kazytauginas sorry We couldn’t join the walk but we can join the fight! @lf78_apparel proudly owned by a #LupusWarrior #LF78 #lupusawareness #lupuswalk #LosAngeles #lupussupport

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#LupusWarrior #LupusAwareness #TheChristinaProject 😊💜💪

#LupusWarrior #LupusAwareness #TheChristinaProject 😊💜💪

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A gata da @andressabimel pediu minha receita de Crepioca. Sei que existem varias formas de fazer mas gosto muito dessa forma que faço hoje em dia 😋
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RECEITA DE CREPIOCA
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INGREDIENTES:
1 ovo 🥚 
1 Clara 🥚 
20gr de goma de tapioca
20gr de creme de queijo minas (pode ser requeijão ou creme de ricota)
Sal
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MODO DE PREPARO:
Bata tudo com o garfo e leve a frigideira aquecida e untada com azeite em fogo baixo e tampada, começou a ficar sequinha por cima e as bordas a dar uma levantadinha é só virar e colocar o recheio que quiser tampar por mais uns segundinhos e está pronta 😉
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Macros:
Gorduras: 6,8gr
Carboidratos: 13,8gr
Proteínas: 12,9gr
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Os macros podem ter uma pequena diferença de acordo com a variação da marca utilizada, por isso é legal que lance ingrediente por ingrediente no aplicativo conforme a marca usada 😉
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#fitnessmotivation #fitnessgirl #lifestyle#bariatrica #bariatricasleeve #motivation #lupus #les #lupusawareness  #strongwoman #beautifulwoman  #amorproprio #foco #determinação #determination #sofem #boraficarfortinha #weightloss #weithlossjourney #dietaflexivel #iifym #iifymgirls #iifymlifestyle #iifymweightloss #iifymbrasil #cabenosmacros
#antesedurante #exobesa #diarioalimentar  #instagood

A gata da @andressabimel pediu minha receita de Crepioca. Sei que existem varias formas de fazer mas gosto muito dessa forma que faço hoje em dia 😋 • RECEITA DE CREPIOCA • INGREDIENTES: 1 ovo 🥚 1 Clara 🥚 20gr de goma de tapioca 20gr de creme de queijo minas (pode ser requeijão ou creme de ricota) Sal • MODO DE PREPARO: Bata tudo com o garfo e leve a frigideira aquecida e untada com azeite em fogo baixo e tampada, começou a ficar sequinha por cima e as bordas a dar uma levantadinha é só virar e colocar o recheio que quiser tampar por mais uns segundinhos e está pronta 😉 • Macros: Gorduras: 6,8gr Carboidratos: 13,8gr Proteínas: 12,9gr • Os macros podem ter uma pequena diferença de acordo com a variação da marca utilizada, por isso é legal que lance ingrediente por ingrediente no aplicativo conforme a marca usada 😉 • #fitnessmotivation #fitnessgirl #lifestyle #bariatrica #bariatricasleeve #motivation #lupus #les #lupusawareness #strongwoman #beautifulwoman #amorproprio #foco #determinação #determination #sofem #boraficarfortinha #weightloss #weithlossjourney #dietaflexivel #iifym #iifymgirls #iifymlifestyle #iifymweightloss #iifymbrasil #cabenosmacros #antesedurante #exobesa #diarioalimentar #instagood

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I still get it in on the stove burners when I feel up to it.  Chili garlic shrimp w/ cashews and gluten free sticky rice.  Sauce is ginger, celery, liquid aminos, honey, lemon juice, minced garlic, toasted sesame seed oil, and chili pepper. I had shredded wheat for dinner instead.  I didn’t feel like eating after I cooked🤷🏾‍♀️. #healthyeats #betterThanTheCarryOut

#ificanyoucan
#strength 
#courage 
#lupus
#invisibleillness 
#lupussucks 
#lupuswarrior 
#lupusawareness 
#healthylifestyle
#chronicillness 
#thickfit 
#weightloss

I still get it in on the stove burners when I feel up to it. Chili garlic shrimp w/ cashews and gluten free sticky rice. Sauce is ginger, celery, liquid aminos, honey, lemon juice, minced garlic, toasted sesame seed oil, and chili pepper. I had shredded wheat for dinner instead. I didn’t feel like eating after I cooked🤷🏾‍♀️. #healthyeats #betterThanTheCarryOut #ificanyoucan #strength #courage #lupus #invisibleillness #lupussucks #lupuswarrior #lupusawareness #healthylifestyle #chronicillness #thickfit #weightloss

42 likes - 42 comments
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El lupus puede tener muchos síntomas que difieren de una persona a otra, pueden aparecer y desaparecer, a eso se le llama

. El lupus puede tener muchos síntomas que difieren de una persona a otra, pueden aparecer y desaparecer, a eso se le llama "brotes". Los brotes pueden ser leves o severos, y nuevos síntomas pueden aparecer en cualquier momento. La exposición al sol y el estrés diario son unos de los activadores más comunes de brotes en los pacientes con lupus. Debido a la sintomatología tan variada entre cada paciente podría decirse que cada paciente es un tipo de lupus. #lupus #lupuselsalvador #lupusawareness #lupuseducation #lupusinfo #autoinmunedisease #chronicillness

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Come hang out with me and Urban Greenhouse Dispensary (@ugd_az) this Friday at the @fullmoonfestivalphx. We’re celebrating the harvest moon and start of the autumn equinox with a music and arts festival that also includes a moonlit vinyasa flow. We want to see you there, so we’re giving away 2 free tickets and the CSGC Astral Flower Tee 🌿 l’ll also be joining @ugd_az at their table to help them answer your MMJ questions, and my CSGC Astral Flower Tee will be available at a discounted price for my Phoenix people!🌵I hope to meet some of you in person! Come see us! 🌿🌹
Giveaway Rules:
🌿 Must follow @ugd_az and @chronicsadgirlsclub
🌿 Repost image, tag both @ugd_az & @chronicsadgirlsclub
🌿 Ends Thursday, Sept. 20 @ 11:59pm
🌿1 winner will be chosen. You DO NOT have to be a MMJ patient to enter or win. Good luck! 🌿

Come hang out with me and Urban Greenhouse Dispensary (@ugd_az) this Friday at the @fullmoonfestivalphx. We’re celebrating the harvest moon and start of the autumn equinox with a music and arts festival that also includes a moonlit vinyasa flow. We want to see you there, so we’re giving away 2 free tickets and the CSGC Astral Flower Tee 🌿 l’ll also be joining @ugd_az at their table to help them answer your MMJ questions, and my CSGC Astral Flower Tee will be available at a discounted price for my Phoenix people!🌵I hope to meet some of you in person! Come see us! 🌿🌹 Giveaway Rules: 🌿 Must follow @ugd_az and @chronicsadgirlsclub 🌿 Repost image, tag both @ugd_az & @chronicsadgirlsclub 🌿 Ends Thursday, Sept. 20 @ 11:59pm 🌿1 winner will be chosen. You DO NOT have to be a MMJ patient to enter or win. Good luck! 🌿

76 likes - 76 comments
There are many reasons why we become patient advocates. Outside of representing ourselves and our loved ones, we as patient advocates can have significant influence on clinical trials, drug access, patient support, and even politicians. We have much more power than we credit ourselves for. With advocacy we have gained million of dollars in research dollars dedicated to lupus, changed law, established new physicians and patient programs and much much more. You can use your strength as a patient in the real world, too. Will you? .
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#lupus #lupusfff #sle #patient #advocacy #lupusawareness #strength #patients #politician #research #autoimmunedisease #insight #share #lifeasapatient #instadaily #instagood #health #healthcare #love #life #change #instagram #patientadvocate #support #knowledge #activism

There are many reasons why we become patient advocates. Outside of representing ourselves and our loved ones, we as patient advocates can have significant influence on clinical trials, drug access, patient support, and even politicians. We have much more power than we credit ourselves for. With advocacy we have gained million of dollars in research dollars dedicated to lupus, changed law, established new physicians and patient programs and much much more. You can use your strength as a patient in the real world, too. Will you? . . . . #lupus #lupusfff #sle #patient #advocacy #lupusawareness #strength #patients #politician #research #autoimmunedisease #insight #share #lifeasapatient #instadaily #instagood #health #healthcare #love #life #change #instagram #patientadvocate #support #knowledge #activism

22 likes - 22 comments
1 frozen banana + cocoa powder + vanilla protein + almond butter + water + ice = Breakfast when you’re late for work! 🍌🥜🥛 #breakfast

1 frozen banana + cocoa powder + vanilla protein + almond butter + water + ice = Breakfast when you’re late for work! 🍌🥜🥛 #breakfast

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So excited to have learned so much, but to now be back home with Joe & Tarzan! I ended up getting what I'm assuming was food poisoning on Day 2 from my breakfast, and literally getting sick at Dulles Airport - thank god I didn't have to use this puke bag on the plane, as I feared I would. 
There's no place like home.
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#blackcloud #foreversick #lupus #lupusawareness #stomachbug #puking #dullesairport #worktravel #unitedairlines #theresnoplacelikehome #sosick #autoimmunedisease #almostpukedintheüber #pukedmybrainsout

So excited to have learned so much, but to now be back home with Joe & Tarzan! I ended up getting what I'm assuming was food poisoning on Day 2 from my breakfast, and literally getting sick at Dulles Airport - thank god I didn't have to use this puke bag on the plane, as I feared I would. There's no place like home. . . . #blackcloud #foreversick #lupus #lupusawareness #stomachbug #puking #dullesairport #worktravel #unitedairlines #theresnoplacelikehome #sosick #autoimmunedisease #almostpukedintheüber #pukedmybrainsout

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LUPUS/MENTAL HEALTH UPDATE: Although I am starting to feel physically healthier I’m going backwards on my mental health, especially with these medications and life events in the last year. Something that was a big part of my health plan was these Ketamine Infusions I was getting as a part of my treatment to treat my mental disorders (anxiety, major depressive,ptsd) Unfortunately this treatment is not yet covered by insurance and each one averages from $700-1000 per 2 hour treatment. I was so close to finishing but I couldn’t afford it, I still can’t. I have a few more and owe $350 to my infusion center for my last one they allowed me to only pay half of. I haven’t gotten any money for disability yet and looks like it may take longer than 2-4 months. It’s a very long process. I also have been thinking about this, I really need a service Dog. There are many times I’m home alone and it has been dangerous, especially on blood thinners and the last incident I had where I fell and Nearly bled to death but my neighbors heard me yelling for help. I can’t believe how much it is for a service dog. It’s ridiculous. Thank you again to everyone who has been supportive in any kind of way. If you can the go fund me link is in my bio. I hate asking for help but I really need it. I’m also very blessed for every ounce of help I’ve had in any way. ❤️🧘‍♀️ I’m trying my hardest guys. I truly can’t wait for you guys to see the documentary we’ve been working on. . . . .  #lupusflare #lupusawareness #healthylifestyle #beauty #depression #anxiety #mentalhealthawareness #ketamine #phyciatricservicedog #servicedog #disabilityawareness #cureforlupus #autoimmunedisease #fibromyalgia #artistsoninstagram #musically #model #modelswanted #documentaryphotography #documentary #abeltonlive #singersongwriter #lyricedits #swimming #swim #strongwomen @nickcannon @selenagomez @selenaqofficial

LUPUS/MENTAL HEALTH UPDATE: Although I am starting to feel physically healthier I’m going backwards on my mental health, especially with these medications and life events in the last year. Something that was a big part of my health plan was these Ketamine Infusions I was getting as a part of my treatment to treat my mental disorders (anxiety, major depressive,ptsd) Unfortunately this treatment is not yet covered by insurance and each one averages from $700-1000 per 2 hour treatment. I was so close to finishing but I couldn’t afford it, I still can’t. I have a few more and owe $350 to my infusion center for my last one they allowed me to only pay half of. I haven’t gotten any money for disability yet and looks like it may take longer than 2-4 months. It’s a very long process. I also have been thinking about this, I really need a service Dog. There are many times I’m home alone and it has been dangerous, especially on blood thinners and the last incident I had where I fell and Nearly bled to death but my neighbors heard me yelling for help. I can’t believe how much it is for a service dog. It’s ridiculous. Thank you again to everyone who has been supportive in any kind of way. If you can the go fund me link is in my bio. I hate asking for help but I really need it. I’m also very blessed for every ounce of help I’ve had in any way. ❤️🧘‍♀️ I’m trying my hardest guys. I truly can’t wait for you guys to see the documentary we’ve been working on. . . . . #lupusflare #lupusawareness #healthylifestyle #beauty #depression #anxiety #mentalhealthawareness #ketamine #phyciatricservicedog #servicedog #disabilityawareness #cureforlupus #autoimmunedisease #fibromyalgia #artistsoninstagram #musically #model #modelswanted #documentaryphotography #documentary #abeltonlive #singersongwriter #lyricedits #swimming #swim #strongwomen @nickcannon @selenagomez @selenaqofficial

67 likes - 67 comments
I love capturing sunsets because they always remind me that tomorrow is another day and another chance to work towards your goals and dreams. 🌅☀️💜

I love capturing sunsets because they always remind me that tomorrow is another day and another chance to work towards your goals and dreams. 🌅☀️💜

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The shirt you wear to get you motivated enough to rehearse through the pain that rises through your legs and stiffens them so much the words,

The shirt you wear to get you motivated enough to rehearse through the pain that rises through your legs and stiffens them so much the words, "rigor mortis," come to mind. Seems appropriate for the Siguiriya I'm trying to choreograph. I'm still alive and while I'm alive, I'm going to keep dancing, so Lupus and Fibromyalgia need to step off. #lupusawareness #lupus #fibromyalgia #spoonie #lupuswarrior #chronicillness #chronicillnesswarrior #flamencodancer #flamencodanceteacher #lupiebroads #mercedesibarraflamenco

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The Lupus Support group, at ACOG, will be hosting this Fashion Show! 
I’ll be a Vendor there, providing some of the best in handcrafted jewelry!  Please come out & support this cause if you can! 💜💜💜💜💜 #lupusawareness #supportacause #fashionshow #jewelryvendor

The Lupus Support group, at ACOG, will be hosting this Fashion Show! I’ll be a Vendor there, providing some of the best in handcrafted jewelry! Please come out & support this cause if you can! 💜💜💜💜💜 #lupusawareness #supportacause #fashionshow #jewelryvendor

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Benlysta will be staying in the fridge this week.
Being sick, I decided it would be smart to hold off. On the GSK website it says that you should not receive benlysta if you have an infection (which I’m not sure if I have).
White blood cells in your body fight infections, and Benlysta itself can lower your white blood cell count. This in turn can hurt your body’s ability to fight infections.
My last white blood cell count from a month and a half ago was a little low (3.4 with a range of 3.6-11 being normal).
If there’s any chance I have an infection, my body will have a harder time fighting it or it could worsen much more quickly and severely. Better to be safe & hold off!

Benlysta will be staying in the fridge this week. Being sick, I decided it would be smart to hold off. On the GSK website it says that you should not receive benlysta if you have an infection (which I’m not sure if I have). White blood cells in your body fight infections, and Benlysta itself can lower your white blood cell count. This in turn can hurt your body’s ability to fight infections. My last white blood cell count from a month and a half ago was a little low (3.4 with a range of 3.6-11 being normal). If there’s any chance I have an infection, my body will have a harder time fighting it or it could worsen much more quickly and severely. Better to be safe & hold off!

76 likes - 76 comments
Walk in from today! I had the honor of tattooing these purple butterflies on a beautiful lady that wanted them to represent her 3 children as well as her fight with Lupus & other various autoimmune diseases. Thank you so much @keechie_c for your trust and support & for brightening my day! 💜 
#cheyenne #cheyennehawk #cheyennehawkpen #fusionink #anchoredstencilsolution #butterflytattoo #butterflytattoos #girlswhotattoo #girlswithtattoos #lupusawareness

Walk in from today! I had the honor of tattooing these purple butterflies on a beautiful lady that wanted them to represent her 3 children as well as her fight with Lupus & other various autoimmune diseases. Thank you so much @keechie_c for your trust and support & for brightening my day! 💜 #cheyenne #cheyennehawk #cheyennehawkpen #fusionink #anchoredstencilsolution #butterflytattoo #butterflytattoos #girlswhotattoo #girlswithtattoos #lupusawareness

44 likes - 44 comments

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